Searchable abstracts of presentations at key conferences in endocrinology

ea0095p133 | Miscellaneous/other 2 | BSPED2023

Patient and public involvement: Techniques used to engage with children and young people about research in congenital adrenal hyperplasia

Tonge Joseph , Bacila Irina , Barker Nicki , Aslam Muniba , Salim Eliza , Walsh James , Phillips Bob , Krone Nils , Lawrence Neil

Background: Incorporating the ideas and views of children and young people (CYP) with endocrine conditions from early stages in the research life cycle will increase the benefit for patients and contribute to high impact research.Methods: We conducted two days of patient and public involvement (PPI) sessions with patients from a tertiary endocrine centre who are living with Congenital Adrenal Hypoplasia (CAH). We explore...